[The aim of the research study was to get a better picture of the patient’s quality of life with Huntington’s disease and their caretaker’s. One of the main topics of the investigation was the family, because taking care of a Huntington’s patient can have a big impact on their lives. Our further concern was to introduce the concept for the families and test their open mindedness, if they would take assistance from nurse graduates to make the patient’s medical journey shorter and help with their everyday life challenges. 

The cross-sectional research was done by validated tests, as well as, self-made tests which contained socio-demographic data and questions regarding the disease. The trial took place at Semmelweis University, at the Institute of Genomic Medicine and Rare Disorders in collaboration with the patients and their families. 

According to the patients, their life quality is affected more physically than their mental health. The experiment showed that the disease has a big impact on the quality of life of the family members. The family members would be more open in regards to accepting help from advanced practice nurses. 

Huntington’s disease has a negative impact on the quality of life of the patients and their families. It would be adequate to study if the provided help of advanced practice nurses could improve their quality of life. ]

[The purpose of the study is to investigate the quality of life of young adults in relation to oral health and how smoking affects this. The aim is to explore the differences in oral health-related quality of life between smokers, non-smokers, and quitters in a given age group.

The survey was conducted using a self-designed online questionnaire that included the Oral Health Impact Profile (OHIP-14) questionnaire. The survey was conducted from May 01 to June 30, 2023, using a nonrandom sampling method that relied on easily accessible subjects. Data were processed and analysed using IBM SPSS 20.0 statistical software, descriptive statistics, Kruskal-Wallis test, and Spearman’s rank correlation analysis (p<0.05). 

Based on the 317 assessable responses, smokers had a higher average OHIP-14 total score than non-smokers and quitters, but there were no significant differences in oral health-related quality of life between the groups (p=0.540). Four self-reported questions were added to the OHIP-14 questionnaire: dissatisfied with the colour of their teeth; afraid of communicating with others without seeing their teeth being seen; afraid of having a serious oral problem; afraid of losing their teeth. These issues are highly correlated with the OHIP-14 questionnaire and fear of oral lesions appears to be present among smokers.

Young adults do not yet show a significant deterioration in oral quality of life due to smoking, but additional questions are worth considering to assess the quality of life in smokers.]

[The high blood pressure disease is one of the primary risk factors for the development of other cardiovascular diseases. The aim of the present study was to assess the medication habits, sleep quality, and quality of life of patients aged 45 and older living with hypertension.

Our study was a quantitative descriptive cross-sectional survey conducted in 2022 in the form of an online questionnaire among patients aged 45 and older suffering from hypertension (n=143). The data collection tools included the Morisky Medication Adherence Scale (8 items), the Pittsburgh Sleep Quality Index, EQ-5D-5L, and a self-designed questionnaire.

Lower age was associated with higher levels of medication adherence (R=-0.36; p=0.024). Patients who regularly visited their general practitioner showed more consistent medication intake (p=0.048). Adequate sleep quality positively influenced the quality of life (p<0.001).

Regular visits to the general practitioner not only facilitate medication adherence but also provide an excellent opportunity for patient education and health promotion. Therefore, it has paramount importance to draw the attention of hypertensive patients to the role of regular check-ups with their general practitioner, which can contribute to the prevention of complications arising from hypertension.]

[Epilepsy is one of the most common neurological disorders. Therapeutic success shows high variability between patients, at least 20-30% of the cases are drug-resistant. It can highly affect the social status, interpersonal relationships, mental health and the overall quality of life of those affected.
Although several studies can be found on the psychiatric diseases associated with epilepsy, only a few researches focus on the occurrence of personality disorders accompanying the latter. The aim of this review is to help clinicians to recognize the signs of personality disorders and to investigate their connection and interaction with epilepsy in the light of current experiences.
The researches reviewed in this study confirm that personality disorders and pathological personality traits are common in certain types of epilepsy and they affect many areas of patients’ lives. These studies draw attention to the importance of a multidisciplinary approach to this neurological disorder and to provide suggestions about the available help options. Considering the high frequency of epilepsy-related pathological personality traits that can have a great impact on the therapeutic cooperation and on the patients’ quality of life, it important that the neurologist recognizes early the signs of the patient’s psychological impairment. Thus they can get involved in organizing the support of both the patient and their environment by including psychiatrists, psychologists, social and self-help associations.
As interdisciplinary studies show, epilepsy is a complex disease and besides trying to treat the seizures, it is also important to manage the patient’s psychological and social situation. Cooperation, treatment response and quality of life altogether can be significantly improved if our focus is on guiding the patient through the possibilities of assistance by seeing the complexity and the difficulties of their situation.]

[Patients in hospice-palliative care are treated with the help of a multidisciplinary team, which includes dietittian too, as a member. The tasks of the dietitian are complex, they participate in the malnutrition screening, maintaining and reaching the patients’ appropriate nutritional status, exploring and solving different nutritional problems, shaping the diet according to individual needs, recommending clinical formula, if needed.]