[Postnatal palliative care is a very under-researched and under-represented area of paediatric palliative care in Hungary.
Aim: The examination was carried out to assess, in the absence of relevant Hungarian protocols, the professional and psychological duties of nurses working in neonatal and pediatric intensive care units regarding the physical, mental, and emotional support of the child and their parents. Additionally, it aimed to identify which support programs and professional training opportunities assist these professionals who are under significant psychological stress.
The quantitative, cross-sectional, comparative study was conducted on a voluntary basis with the participation of 41 individuals, using an anonymous questionnaire method. Additionally, interviews were conducted with professionals in the helping professions (n=3) regarding their duties, experiences, opinions, and knowledge.
In terms of outcomes, it is difficult to draw any conclusions due to low participation, however, questions on newborn pain and behaviour assessment, parent support and caregiver involvement incare fortunately paint a positive picture of neonatal palliative care in this country, in contrast to the lack of supervision and training for professionals in supportive processing which can lead to distress, and burnout.
The quintessence of the research is that there is a need for guidance on the topic for both children, their parents and caregivers, as well as for professional training and supportive environments to ensure more effective bereavement processing and care.]