Journal of Nursing Theory and Practice

[Quality of Life of Cancer Patients’]

PATÓ Edit

APRIL 30, 2018

Journal of Nursing Theory and Practice - 2018;31(02)

[Aim of the study: This research is the part of an extended examination. It’s aim is to assess the cancer patients’ quality of life, how the diseas effects in the way of life, and also the psychologycal burden of the patients. Furthermore to assess the patient’s knowledge of their desease. Material and Methods: The research is descriptive, empirical, supplemenary, which in nurses and patients in oncology departments of Hondvéd Hospital in Budapest and Bács-Kiskun County Hospital in Kecskemét were attend. The method of the survey was an individual questionnaire. The evaulation of the results made with MS Excel and SPSS. The complete evaluable questionnaire’s rate is 74,9% (N=131). Results: the patients judge their own health and quality of life to low in a rate of 56,6%, and 75% of them stated that their way of life and their daily routin has changed in a significant extent. 50% of the responders described their actual emotional condition with a negative indicative, and also occur different psychic disfunctions amuong them. For example the depression in a rate of 17,5%, anxiety is in 18,5%, and reduced self-evaluation in 14,1%. A significant majority (76,3%) of respondents don’t possess the appropriate knowledge. Conclusions: The disease effect on cancer patients’ way of life and quality of life in a significant way. Patients are exposed to a significant psycholigycal burden. ]

COMMENTS

0 comments

Further articles in this publication

Journal of Nursing Theory and Practice

[The Florence Nightingale Medal - Its History and the Hungarian Connection]

SÖVÉNYI Ferencné, PERKÓ Magdolna, BOROS Károlyné, FEDINECZNÉ VITTAY Katalin

[Apropos of the International Nurses Day, authors discuss Nightingale’s impact on the development of nursing and her role in international nursing history. They consider as one of the main achievements of Nightingale that she raised the profile of nursing to an appreciated profession, thereby contributing to modifying the widely held view on women’s role in society in Hungary, too. After reviewing the developments related to the educational empowerment of women in the Hungary of the 19th century they suggest that these changes as well as awakening of the nation might explain the decision of the Hungarian Red Cross Society to table a motion at the 8th International Conference of Red Cross Societies in London with a view to establishing a medal in honour of Florence Nightingale. The Hungarian proposal was approved by the international conference in Washington in 1912 and a resolution was passed to institute the Florence Nightingale Medal. ]

Journal of Nursing Theory and Practice

[The psychological Well-being and Burnout among Ambulance Personnel]

IVÁNKOVITS László

[The aim of the study: The aim of the presented study was to investigate the psychological well-being and burnout among ambulance personnel of the Hungarian National Ambulance Service. Our goal was to identify the ambulance specific stressors that negatively affect the psychological health of personnel and lead to burnout. Material and method: The quantitative, cross-sectional study included 1979 ambulance personnel. Level of burnout was measured by Pines-Aronson Burnout Inventory. SPSS version 17.0 was used for statistical analyses. Types of analyses included Khi square test, ANOVA and correlation analysis. Level of significance was defined at p<0.05. Results: The 40% of ambulance personnel are affected by job-related stressors. The heightened and constant state of readiness does not let time for discussing work-related experiences. There was significant correlation between burnout level, years worked at NAS, and the evaluation of workplace circumstances and climate. Conclusion: Due to the results of the present study we created different possibilities of prevention and intervention that can help handle the symptoms of burnout among ambulance personnel.]

Journal of Nursing Theory and Practice

[Nurses Knowledge and Tasks of real Time Evacuation of Inpatient Care Institutions]

PÁPAI Tibor, PÁPAI Dániel

[In our modern, globalized world, there is a significant increase in the number of events requiring immediate action where coordinating the rescue, health care and placement of several people at the same time. Unfortunately, we can count not only on international, but domestic relations, for various mass disaster threats and events, whether it is a natural disaster or a different form of artificial disaster. It is of the utmost importance to treat such a qualified situation in inpatient care and health care institutions, where there is a large number of patients and caregivers with limited self-reliance and movement. Although it is important to emphasize the importance of disaster prevention in the domestic context, in cases requiring immediate and rapid intervention, there is a great deal of responsibility and responsibility for nursing staff. By questionnaire surveys, we investigated the catastrophic and evacuation knowledge of inpatient care nurses and the system and method of acquiring these skills. After the results were processed, we concluded that our assumptions proved that the knowledge of the target group in question was very incomplete. In order to increase efficiency, we consider it of the utmost importance to develop a procedure based on unified principles but to adapt to the local conditions of the given institution and to develop its ability-based education system. ]

Journal of Nursing Theory and Practice

[Safe Handover - Opportunities to improve Patient Handover]

VASS Zsolt, SINKA Lászlóné Adamik Erika, BÖCSKEI Anna, GÖBÖLY Ágnes

[Mistakes, errors made in the patient handover process can result in severe outcomes, but with appropriate measures it is possible to decrease their numbers. Therefore, we considered it important to develop a methodology which would help us analysing our internal processes. Getting to know the current situation well provides the opportunity to implement those changes into our daily work which focus on the actual problems, and which could lead to measurable improvements in our everyday work processes. ]

All articles in the issue

Related contents

Clinical Neuroscience

[Disease burden of Duchenne muscular dystrophy patients and their caregivers]

MOLNÁR Mária Judit, PFLIEGLER György, PÉNTEK Márta, GULÁCSI László, BRODSZKY Valentin, BONCZ Imre, HERCZEGFALVI Ágnes, MELEGH Béla, KOSZTOLÁNYI György, BAJI Petra, SZŐNYI László Pál, SZEGEDI Márta, POGÁNY Gábor

[Background and purpose - Data on the disease burden of Duchenne Muscular Dystrophy are scarce in Hungary. The aim of this study was to assess patients’ and their caregivers’ health related quality of life and healthcare utilisations. Methods - A cross sectional survey was performed as part of the European BURQOL-RD project. The EQ-5D-5L and Barthel Index questionnaires were applied, health care utilisations and patients’ informal carers were surveyed. Results - One symptomatic female carer, 50 children (boys 94%) and six adult patients (five males) participated in the study, the latter two subgroups were included in the analysis. The average age was 9.7 (SD=4.6) and 24.3 (SD=9.8) years, respectively. Median age at time of diagnosis was three years. The average EQ-5D score among children and adults was 0.198 (SD=0.417) and 0.244 (SD=0.322), respectively, the Barthel Index was 57.6 (SD=29.9) and 53.0 (SD=36.5). Score of satisfaction with healthcare (10-point Likert-scale) was mean 5.3 (SD=2.1) and 5.3 (SD=2.9). 15 children were hospitalised in the past 12 months for mean 12.9 (SD=24.5) days. Two patients received help from professional carer. 25 children (mean age 11.1, SD=4.4 years) were helped/supervisied by principal informal carer (parent) for mean 90.1 (SD=44.4) hours/week and further family members helped in 21 cases. Correlation between EQ-5D and Barthel Index was strong and significant (0.731; p<0.01) as well as with informal care time (-0.770; p<0.01), but correlation with satisfaction with health care was not significant (EQ-5D: 0.241; Barthel Index: 0.219; informal care: -0.142). Conclusion - Duchenne muscular dystrophy leads to a significant deterioration in the quality of life of patients. Parents play outstanding role in the care of affected children. This study is the first in the Central and Eastern European region that provides quality of life data in this rare disease for further health economic studies.]

LAM KID

[Quality of life of patients with osteoporosis in Hungary]

SPEER Gábor, VOKÓ Zoltán, HORVÁTH CSABA, BORS Katalin, KALÓ Zoltán, INOTAI András

[AIM - The aim of our study was to estimate the loss of quality of life due to osteoporotic fractures. We performed a cross-sectional study including 840 patients in 21 centers that specialise in the care of patients with osteoporosis and in acute care of fractures. METHODS - Patients were selected randomly and stratified for the location of and time elapsed since the fracture. Quality of life (QoL) was assessed by the Qualeffo-41 and the EuroQol-5D questionnaires. RESULTS - Patients with morphometric fractures of more than one vertebra had the lowest median EQ-5D index value (0.59). Symptomatic vertebral, hip and arm fractures also considerably decreased QoL. Patients with morphometric fractures of more than one vertebra had the lowest total Qualeffo-41 score. When controlled for age and gender, patients with hip fracture or morphometric vertebral fracture had at least 0.2 less mean utility values than had osteoporotic patients without history of fracture. Patients with more than a oneyear history of hip fracture had QoL scores as low as had patients with an acute fracture. In case of wrist and arm fractures, the acute loss of QoL somewhat decreased with time. CONCLUSION - In conclusion, osteoporotic fractures, especially hip and vertebral fractures result in a significant loss of patients’ quality of life. Our results show that physicians need to pay a close attention to morphometric vertebral fractures, which contribute to a great loss of human capital.]

Clinical Neuroscience

[Examining the psychometric properties of a new quality of life questionnaire in migraineurs]

PALÁSTI Ágnes, ERTSEY Csaba, MANHALTER Nóra, BOZSIK György, ÁFRA Judit

[Background - The deleterious effect of primary headaches on the sufferers’ quality of life (QOL) has been abundantly documented using both generic and headache-specific instruments. The currently used questionnaires focus on a limited number of factors and therefore may not be sensitive enough to detect the effect of headache type and headache characteristics on QOL, despite the obvious clinical differences. We have devised a comprehensive questionnaire that may be more sensitive to the burden of headache. Objective - To assess the psychometric properties of the new questionnaire on a group of migraineurs. Patients and method - We studied 117 migraineurs who completed the validated Hungarian version of the SF-36 generic QOL measure and our new, 25-item questionnaire. Reliability was assessed by internal consistency, measured by Cronbach’s a of all items. Content validity was exam- ined by calculating the correlation of the items with subscales of the SF-36 measure. The correlation of the patients’ migraine characteristics with the questionnaire’s items was used to assess criterion validity. Results - The questionnaire was quick and easy to administer. The questionnaire demonstrated good reliability, with Cronbach’s alpha being 0.893. Content validity was adequate; most “physical” items of the new questionnaire showed significant correlations with the bodily pain and role physical SF-36 subscales and most “psychical” and “social” items were correlated with mental health and social functioning SF-36 subscales. Criterion validity was adequate, with headache severity being correlated with most of the items. Discussion - In this study the new headache-specific quality of life instrument showed adequate psychometric properties.]

Clinical Neuroscience

[Earlier and more efficiently: the role of deep brain stimulation for parkinson’s disease preserving the working capabilities]

NAGY Ferenc, JANSZKY József, KOMOLY Sámuel, KOVÁCS Norbert, BALÁS István, ASCHERMANN Zsuzsanna, DÓCZI Tamás, DELI Gabriella, BOSNYÁK Edit

[Background – The recently published “EarlyStim” study demonstrated that deep brain stimulation (DBS) for the treatment of Parkinson’s disease (PD) with early fluctuations is superior to the optimal pharmacological treatment in improving the quality of life and motor symptoms, and preserving sociocultural position. Our retrospective investigation aimed to evaluate if DBS therapy was able to preserve the working capabilities of our patients. Methods – We reviewed the data of 39 young (<60 years-old) PD patients who underwent subthalamic DBS implantation at University of Pécs and had at least two years follow-up. Patients were categorized into two groups based on their working capabilities: Patients with active job (“Job+” group, n=15) and retired patients (without active job, “Job-” group, n=24). Severity of motor symptoms (UPDRS part 3), quality of life (EQ-5D) and presence of active job were evaluated one and two years after the operation. Results – As far as the severity of motor symptoms were concerned, similar (approximately 50%) improvement was achieved in both groups. However, the postoperative quality of life was significantly better in the Job+ group. Majority (12/15, 80%) of Job+ group members were able to preserve their job two years after the operation. However, only a minimal portion (1/24, 4.2%) of the Job- group members was able to return to the world of active employees (p<0.01, McNemar test). Conclusion – Although our retrospective study has several limitations, our results fit well with the conclusions of “EarlyStim” study. Both of them suggest that with optimal timing of DBS implantation we may preserve the working capabilities of our patients.]

Journal of Nursing Theory and Practice

[Nursing career of the high-school students]

BALOGH Zoltán, TISÓCZKI Evelin

[Aim of the research: The aim of the study is to analyze the trends of student orientation in the age and compulsory education process by age group. In our research, we would like to answer the question of how much „popularity” the health care profession as a professional area among students participating in Hungarian public education. If you feel this area of expertise close to you, what kind of vision you have. Research and sampling methods: A self-constructed questionnaire was administered during 24 Oct 2017 - 13 Jan 2018. In all counties of Hungary, the authors sent it to at least one of the training sites and filled up with me (N=329). These training sites are involved in healthcare training. Data were analysed with SPSS 15.0 for Windows statistical program. Chi square, Mann-Whitney tests were applied (p <0,05). Results: Out of the 159 people (48%), 170 (52%) in the family have healthcare workers. When performing the controls of the distributions, we can conclude that there is no significant difference in the distribution between the two groups, so there is the same number - that is, statistically significant difference - of the proportion of those willing to choose the health care path. In terms of career choice, 276 (86%) of respondents believe it is likely to be oriented towards the health care path, with 46 people (14%) planning their life is in another direction. Seven of its principal did not answer the question. By completing the Mann-Whitney test, we can conclude that there is no significant difference between the two groups in the medians, so there is no difference - that is, statistically significant difference - with respect to career choice as a nursing profession’s esteem. Of the 329 participants, 215 (65%) replied that they would like to work as a nurse, while 114 (35%) responded that they would not choose this job. Conclusion: Don’t influence significantly the career entrant if there is a healthcare worker in the family. Who stand in front of career choice don’t influence significantly the appreciation but is more motivated by sympathy and helplessness toward another person.]