Journal of Nursing Theory and Practice

[Examination of the quality of life in case of patient with the Multiple Sclerosis]

SZABÓ Julianna

JUNE 30, 2015

Journal of Nursing Theory and Practice - 2015;28(03)

[Aim of the research: To assess the impact of Multiple Sclerosis on quality of life and to consider whether there is a significant difference in the understand of the disease and the subjective assessment of quality of life in those subjects living in rural eastern Hungary and those living in Budapest. Research and sampling methods: the following questionnaires were use in the study: - Standard Test Questionnaire (SF-36) Social Support Questionnaire, and the Short Marital Stress Scale (abbreviated). Socio-demographic and disease indices were also utilized. These questionnaires were distributed to patients who have a diagnosis of Multiple Sclerosis. The patients attended the Neuro-immunology outpatients departments in the Budapest University’s St.Imre Teaching Hospital Specialist Multiple Sclerosis Centre and Josa Andras Hospital in Nyíregyháza (N=100), between August 2013 and January 2014. Results: It was found that due to the limiting nature of the disease the patients reported a significant effect on their physical condition. They were able to care for themselves in every day activities, but reported a limitation in leisure - time activities. Families play a decisive role in social contact. These results were confirmed by the patients’ observations. Those patients, who have the support of their spouses, report an increase in their health and wellbeing. There was little evidence of animosity towards those without Multiple Sclerosis.Those in Budapest achieved higher values in most dimensions, except social function and vitality, compared with those living in the country. Conclusions: The Researcher observed that relief organisations for the assistance and support of those with Multiple Sclerosis did not seem to meet the needs of the patients. Multiple Sclerosis is a chronic disease affecting all dimensions of Quality of Life. Need to strengthen the positive indicators of Quality of Life in those who are living with the disease and support families caring for those affected and enabling the maintenance of proper social relations and of social usefulness. ]



Further articles in this publication

Journal of Nursing Theory and Practice

[Influencing factors in the rehabilitation of periprotetical infection of the hip and knee joint replacement]

FÜLÖP Annamária, FARKAS Péter, SOMLAI Krisztián, CSERNUS Mariann

[Aim of the research: The aims of the authors were to compare the clinical proceeding of periprosthetic infection with comorbidities and age, respectively. They were investigated the proportion of prothesis removal to achieve healing in case of periprosthetic infection and the influence of certain comorbities to infection elimination. Research and sampling methods: In the study, clinical and follow up data was collected retrospectively through 3 years from 46 patients treated due to hip and knee joint periprosthetic infection. For statistical analysis, SPSS program was used. Results: According to the examination, loss of function in joints occurs in 82% of cases, although 50% of the infected prostheses can be salvage primarily based on patient follow up data. In case of diabetic patients, positive tendency was observed between the days of hospitalization or age and the chance of loss of function. Significant difference (p=0.022) was determined between the leucocytosis at the time of admission and the loss of function. Conclusions: There is no clear prognostic factor, which can enhance a patients group, who has failed to commit everything to keep the prosthesis observance. ]

Journal of Nursing Theory and Practice

[Practical role of nurses in early recognition in sepsis and curing process]

TÓTH Zoltánné

[Aim of the research: The aim of my research is to show detailed analysis of clinical categorizing of sepsis and clarifying its diagnostic difficulties. The study shows the elements of diagnostic and monitoring methodology during attendance including the importance of triage. Research and sampling methods: The research was done in a III progressive level hospital in the capital at the Emergecy Department emphasizing one group of illness: sepsis. 81 patients were analysed according to the 2013 data turnover. The method of the research is based on different document analysis and data gathering. In parallel with it, in the following parts of the study I was examining the competences of nurses with different qualifications at the department who were doing triage activity during attendance.Evaluation of the summarized results was created by SPSS 14.0 programme. Results: It was proved from the summarized data that triage activity done by nurses with septic patients was not influenced neither by professional experience nor by qualification of the nurses. More than half of the patients at the departments was not given the correct classification so they were not given the therapy in time. Conclusions: Nurses at the emergency department do not have the necessary knowledge on classification system of triage , that is why each nurse at the department must have the opportunity to improve their knowledge on triage or those not having it must acquire both theoretical and practical knowledge. ]

Journal of Nursing Theory and Practice

[History of operating room nursing profession]


[Complete personal and material condition are foundations of operation. Surgical assistant (scrub nurse) is indispensable part of surgical group of workers who has significant role in direct operation beside preparation and after operation periods. Qualified scrub nurse instrumentation to surgeon who operates and to his assistant which required perfect knowledge of every means and materials. Technical development result in change of surgery’s repertoire: new tipes of procedures and devices. Surgical assistants have to be abreast with developments, with changing working environment, qualification and laws. Author represent the history of surgical assistant work from the begining to nowadays. Author demonstrate advent of surgical assistant profession, change of vocational training and attached laws, exercises of scrub nurse at the present time and in the past. ]

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Journal of Nursing Theory and Practice

[The Effect of Asthma Bronchiale on Everyday life Activities Among Adolescents]

RÁCZ Viktória Kinga, HEGEDŰS Bianka Ágnes , SZEBENI-KOVÁCS Gyula , FERENCZY Mónika

[The aim of this study is to assess the relationship between the physical activity of asthmatics, sleep disorders, the extent of asthma treatment, and to assess the quality of life in terms of physical activity. We conducted our quantitative, cross-sectional survey between 2020-2021. In a non-randomized, comfort sampling the target group was defined as adolescents aged between 14–18 years, their diagnosis of asthma bronchiale had to be for at least 1 year ago. The data were collected by a self-prepared questionnaire, the domains included: socio-demographic questions related to physical activites, symptoms, sleep disorders, severity of asthma. We used miniAQLQ to assess quality of life. The statistical analysis were performed by using Microsoft Excel 2016 and SPSS v 24 programs. Descriptive statistics (mean, standard deviation, minimum, maximum), two-sample t-test, Chi-square test were performed. The mean age of the respondents was 16±1.51, 38% were boys and 62% were girls (N=105). There was no significant difference between physical activity and the frequency of seizures and sleep disorders (p>0.05). There is a significant difference between the genders and the symptoms increasing with intense exercise (p=0.02). We found significant correlation between the active participations in physical education classes and the severity of the disease (p=0.021). There is a significant correlation between moderate-, social activities and physical activity (p<0.05). Appropriate health education, recommendation in career choices as well as in physical activities done by nurses may lead to decrease in the number of suffocation attacks in cases of adolescents suffering from asthma bronchiale.]

Clinical Neuroscience

[Disease burden of Duchenne muscular dystrophy patients and their caregivers]


[Background and purpose - Data on the disease burden of Duchenne Muscular Dystrophy are scarce in Hungary. The aim of this study was to assess patients’ and their caregivers’ health related quality of life and healthcare utilisations. Methods - A cross sectional survey was performed as part of the European BURQOL-RD project. The EQ-5D-5L and Barthel Index questionnaires were applied, health care utilisations and patients’ informal carers were surveyed. Results - One symptomatic female carer, 50 children (boys 94%) and six adult patients (five males) participated in the study, the latter two subgroups were included in the analysis. The average age was 9.7 (SD=4.6) and 24.3 (SD=9.8) years, respectively. Median age at time of diagnosis was three years. The average EQ-5D score among children and adults was 0.198 (SD=0.417) and 0.244 (SD=0.322), respectively, the Barthel Index was 57.6 (SD=29.9) and 53.0 (SD=36.5). Score of satisfaction with healthcare (10-point Likert-scale) was mean 5.3 (SD=2.1) and 5.3 (SD=2.9). 15 children were hospitalised in the past 12 months for mean 12.9 (SD=24.5) days. Two patients received help from professional carer. 25 children (mean age 11.1, SD=4.4 years) were helped/supervisied by principal informal carer (parent) for mean 90.1 (SD=44.4) hours/week and further family members helped in 21 cases. Correlation between EQ-5D and Barthel Index was strong and significant (0.731; p<0.01) as well as with informal care time (-0.770; p<0.01), but correlation with satisfaction with health care was not significant (EQ-5D: 0.241; Barthel Index: 0.219; informal care: -0.142). Conclusion - Duchenne muscular dystrophy leads to a significant deterioration in the quality of life of patients. Parents play outstanding role in the care of affected children. This study is the first in the Central and Eastern European region that provides quality of life data in this rare disease for further health economic studies.]

Clinical Neuroscience

[The quality of life of the cluster headache patients during the active phase of the headache]


[Introduction - Cluster headache (CH), which affects 0.1% of the population, is one of the most painful human conditions: despite adequate treatment, the frequent and severe headaches cause a significant burden to the patients. According to a small number of previous studies, CH has a serious negative effect on the sufferers’ quality of life (QOL). In the current study, we set out to examine the quality of life of the CH patients attending our outpatient service between 2013 and 2016, using generic and headache-specific QOL instruments. Methods - A total of 42 CH patients (16 females and 26 males; mean age: 39.1±13.5 years) completed the SF-36 generic QOL questionnaire and the headache- specific CHQQ questionnaire (Comprehensive Headache- related Quality of life Questionnaire), during the active phase of their headache. Their data were compared to those of patients suffering from chronic tension type headache (CTH) and to data obtained from controls not suffering from significant forms of headache, using Kruskal-Wallis tests. Results - During the active phase of the CH, the patients’ generic QOL was significantly worse than that of normal controls in four of the 8 domains of the SF-36 instrument. Apart from a significantly worse result in the ‘Bodily pain’ SF-36 domain, there were no significant differences between the CH patients’ and the CTH patients’ results. All the dimensions and the total score of the headache-specific CHQQ instrument showed significantly worse QOL in the CH group than in the CTH group or in the control group. Conclusion - Cluster headache has a significant negative effect on the quality of life. The decrease of QOL experienced by the patients was better reflected by the headache-specific CHQQ instrument than by the generic SF-36 instrument. ]

Clinical Neuroscience

[The changes in quality of life after instrumented surgical fusion of degenerative spondylolisthesis]


[Objective - There is no internationally accepted guideline for treatment of spondylolisthesis in the literature, otherwise this degenerative disease has great social and economical impact. There is no hungarian study examining the efficacy of instrumented fusion procedure in surgical treatment of spondylolisthesis. In current study we examined the effectiveness of fusion technique focusing on the impact of quality of life. Methods - Between 1st January, 2011 and 30th June, 2012 we examined a group of patients - who were operated on by instrumented fusion technique because of spondylolisthesis -, in the National Institute of Clinical Neurosciences, using the Oswestry Low Back Disability Questionnaire. All patients were treated after ineffective conservative treatment. The question was wheather how has changed the patients’ quality of life after the operation. Paired-sample t-test was used in this study. Results - Eighty-eight of the 97 examined patients reported different levels of impovement in the postoperative period, two patient’s condition has not changed in spite of the surgery, seven patient’s condition showed progression in average one year after the surgery. The pain improved most significantly (55.5%) (p<0.0001). Using the 16 point borderline according to the Questionnaire (over moderate disability), significant improvement was detected in 50 patients (51.5%). Succesful surgical result - according to the quality of life - was seen in 77.41% of male and in 50.98% of female patients. According to the different age groups, 72.72% of the younger (before retirement), and 53.06% of the retired patients belonged to this group. At least 15 point improvement was detected 35.05% of the patients, the overall improvement was 10.5 point. Discussion - Our results proved effectiveness of instrumented surgical fusion procedure in the treatment of degenerative spondylolisthesis. According to our results the younger male population with significant symptoms is the group, where improvement in quality of life is more pronaunced after the surgical procedure. Conclusion - The instrumented fusion surgical technique provides successful clinical and surgical outcome in patients with degenerative spondylolisthesis. It could improve the quality of life. Althought multicentre follow-up studies are needed to determine the exact indication and optimal therapy.]