Journal of Nursing Theory and Practice

[Young adults with inflammatory bowel disease of quality of life]

VARGA Győrfi Krisztina1, VÁRADYNÉ HORVÁTH Ágnes2, TÓTH Marianna1, SZUNOMÁR Szilvia2, PAKAI Annamária3

JUNE 30, 2016

Journal of Nursing Theory and Practice - 2016;29(03)

[Aim of the research: In the recent years the number of individuals with inflammatory bowel disease shows a significant increase. The aim was to highlight those factors that negatively affect the quality of life of young adults with inflammatory bowel disease. Research and sampling methods: The authors made a cross-sectional, quantitative research at PTE KK between July 15, 2014 and December 31, 2014. During the non-random, convenience sampling, patients with Crohn’s disease or Ulcerative Colitis, aged between 18 and 46 years were included in the target audience. The data collection tools were standard questionnaires (Illness Intrusiveness Ratings Scale, IBDQ, Stoma Quality of Life Scale) and also demographic information (N=103). Beside the descriptive statistics we also used two-sample t-test with the help of the Microsoft Excel 2013 program (p<0,05). Results: The Illness Intrusiveness Ratings Scale mean score was 55,34±17,06 and in the context of the basic disease and socio-demographic indicators show no significant difference (p> 0.05). The average score of the IBDQ was 51,92 ±18,54, as regard the residence we found significant difference (p <0.001). Conclusions: The quality of life of young adults with inflammatory bowel disease must be improved and should be pursued to reduce the disease burden. The multidisciplinary treatment of the disease is important.]

AFFILIATIONS

  1. PTE Klinikai Központ Sebészeti Klinika
  2. PTE Egészségtudományi Kar, Pécsi Képzési Központ, Ápolástudományi, Alapozó Egészségtudományi és Védőnői Intézet
  3. PTE ETK, Ápolástudományi, Alapozó Egészségtudományi és Védőnői Intézet, Védőnő és Prevenciós Tanszék

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Journal of Nursing Theory and Practice

Physical activity as primary prevention of metabolic syndrome

MARTINEK Lukas, TOTHOVA Valérie, KOVAROVA Maria, DUSICKOVA Tereza, KIMMER David

Metabolic syndrome is constantly discussed, together with cancer diseases, as one of the biggest threats to the 21st century. Despite the differing indicators of specific diseases behind the metabolic syndrome, it is to be understood as a very risky aspect of health. Primary prevention through life style modifications, specifically reduction of the sedentary way of life and integration of regular physical activity into daily life of children, adults and seniors is an appropriate tool of prevention of metabolic syndrome. A number of valid studies show that increasing physical motion contributes to improvement of diseases that stand behind the metabolic syndrome. However, healthy adult population of the Czech Republic shows distinctive dislike of physical activity and primary prevention is insufficiently supported both by experts dealing with this issue and at political level while secondary prevention prevails. Therefore we consider it imperative to involve more funding into programs supporting physical activity. It is also necessary to explore forms of education within the physically active life style.

Journal of Nursing Theory and Practice

[Associated factors of independency in older adults with cognitive impairment living in a long term care institute]

KOVÁCS Éva, JÓNÁSNÉ SZTRUHÁR Izabella, KARÓCZI Csilla Kata, VASS Zsolt, FARKAS Lilla

[Aim of the research: Functional independence determines the elderly’s health and quality of life. In them cross-sectional study the authors analysed the associations between functional abilities (balance, gait, functional mobility, cognitive abilities), age, BMI and comorbidities and independency in older adults with cognitive impairment. Research and sampling methods: 110 elderly people were measured. Self-sufficiency was measured by the Katz-index, balance, and gait by the Tinetti Test and functional mobility by the Timed Up and Go Test. Correlations between variables were analysed with the Spearman’s rank-order correlation. Results: There was strong association between balance (r=0,557), gait (r=0,515), functional mobility (r=-0,647), and independency. It means the better the balance, gait, and functional mobility is, the higher the independency is. There was weak association between age, BMI, cognitive abilities, comorbidities and independency. Conclusion: Results show that preserving of the functional independence in older adults with cognitive impairment is a multidisciplinary task: physiotherapists and nurses should work together to complete doctors’ curative work of chronic diseases.]

Journal of Nursing Theory and Practice

[Participate patients’ education of anticoagulans treatment]

VARGA Miklós Józsefné

[Aim of the research: The exploration of deficiencies arising of patients’ education about the anticoagulans treatment. Research and sampling methods: The research happened at the lying patients on the class, all those who take the anticoagulans medication. Results: The patients’ information is inapposite. This information happened only on the beginning of the treatment, and sometimes they did not receive suitable information about this problem. Conclusions: The information and the ecucation are inapposite of oral anticoagulans treatment. ]

Journal of Nursing Theory and Practice

[The role of nurses in the clinical trials]

NAGY Mónika Anita

[Aim of the research: To assess the occupational duties and responsibilities of nurses in relation to clinical trials in Hungary. Research and sampling methods: Self-administered questionnaire was used among the colleagues working in the field of clinical trial and IBM SPSS 22.0 software using descriptive statistical methods was performed. Results: It was found that the majority of nurses complete the duties of a study coordinator and the task of a study nurse simultaneously. They were involved in everyday activities that characterise the assistance of patients and in the management of paper-based documentation during clinical trials. Lack of knowledge in English language was identified for the reason of reduced-functionality of nurses in 59 cases. Conclusions: nurses have complex responsibilities, although they meet the requirements when it comes to the professional tasks and documentation obligations, but in the case of more complicated professional challenges nurses get fewer opportunities, mainly because of their poor English skills.]

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[Background - The deleterious effect of primary headaches on the sufferers’ quality of life (QOL) has been abundantly documented using both generic and headache-specific instruments. The currently used questionnaires focus on a limited number of factors and therefore may not be sensitive enough to detect the effect of headache type and headache characteristics on QOL, despite the obvious clinical differences. We have devised a comprehensive questionnaire that may be more sensitive to the burden of headache. Objective - To assess the psychometric properties of the new questionnaire on a group of migraineurs. Patients and method - We studied 117 migraineurs who completed the validated Hungarian version of the SF-36 generic QOL measure and our new, 25-item questionnaire. Reliability was assessed by internal consistency, measured by Cronbach’s a of all items. Content validity was exam- ined by calculating the correlation of the items with subscales of the SF-36 measure. The correlation of the patients’ migraine characteristics with the questionnaire’s items was used to assess criterion validity. Results - The questionnaire was quick and easy to administer. The questionnaire demonstrated good reliability, with Cronbach’s alpha being 0.893. Content validity was adequate; most “physical” items of the new questionnaire showed significant correlations with the bodily pain and role physical SF-36 subscales and most “psychical” and “social” items were correlated with mental health and social functioning SF-36 subscales. Criterion validity was adequate, with headache severity being correlated with most of the items. Discussion - In this study the new headache-specific quality of life instrument showed adequate psychometric properties.]

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[Background – The recently published “EarlyStim” study demonstrated that deep brain stimulation (DBS) for the treatment of Parkinson’s disease (PD) with early fluctuations is superior to the optimal pharmacological treatment in improving the quality of life and motor symptoms, and preserving sociocultural position. Our retrospective investigation aimed to evaluate if DBS therapy was able to preserve the working capabilities of our patients. Methods – We reviewed the data of 39 young (<60 years-old) PD patients who underwent subthalamic DBS implantation at University of Pécs and had at least two years follow-up. Patients were categorized into two groups based on their working capabilities: Patients with active job (“Job+” group, n=15) and retired patients (without active job, “Job-” group, n=24). Severity of motor symptoms (UPDRS part 3), quality of life (EQ-5D) and presence of active job were evaluated one and two years after the operation. Results – As far as the severity of motor symptoms were concerned, similar (approximately 50%) improvement was achieved in both groups. However, the postoperative quality of life was significantly better in the Job+ group. Majority (12/15, 80%) of Job+ group members were able to preserve their job two years after the operation. However, only a minimal portion (1/24, 4.2%) of the Job- group members was able to return to the world of active employees (p<0.01, McNemar test). Conclusion – Although our retrospective study has several limitations, our results fit well with the conclusions of “EarlyStim” study. Both of them suggest that with optimal timing of DBS implantation we may preserve the working capabilities of our patients.]

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[Introduction - Cluster headache (CH), which affects 0.1% of the population, is one of the most painful human conditions: despite adequate treatment, the frequent and severe headaches cause a significant burden to the patients. According to a small number of previous studies, CH has a serious negative effect on the sufferers’ quality of life (QOL). In the current study, we set out to examine the quality of life of the CH patients attending our outpatient service between 2013 and 2016, using generic and headache-specific QOL instruments. Methods - A total of 42 CH patients (16 females and 26 males; mean age: 39.1±13.5 years) completed the SF-36 generic QOL questionnaire and the headache- specific CHQQ questionnaire (Comprehensive Headache- related Quality of life Questionnaire), during the active phase of their headache. Their data were compared to those of patients suffering from chronic tension type headache (CTH) and to data obtained from controls not suffering from significant forms of headache, using Kruskal-Wallis tests. Results - During the active phase of the CH, the patients’ generic QOL was significantly worse than that of normal controls in four of the 8 domains of the SF-36 instrument. Apart from a significantly worse result in the ‘Bodily pain’ SF-36 domain, there were no significant differences between the CH patients’ and the CTH patients’ results. All the dimensions and the total score of the headache-specific CHQQ instrument showed significantly worse QOL in the CH group than in the CTH group or in the control group. Conclusion - Cluster headache has a significant negative effect on the quality of life. The decrease of QOL experienced by the patients was better reflected by the headache-specific CHQQ instrument than by the generic SF-36 instrument. ]

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